Welcome to PPMI documentation!

Data Dictionary Version: 0.5.4

Welcome to PPMI Documentation, a centralized source of documentation on both PPMI Original (2010-2020) and PPMI Extended (2020-Present). Click on a table name below to get started.

Category

Tables have been sorted into categories that represent the information they contain. Click on a category name to see only the tables that are apart of that category.

Status

Some tables have concluded collecting data after the implementation of PPMI Extended. Inactive tables are no longer being used, whereas active tables are actively collecting data in PPMI Extended. Ancillary tables come from cores outside of Blackfynn. As of right now, this documentation only covers tables that are collected through the EDC. Thus, we have left the status as “Ancillary”, as we are not certain at this time whether the tables are active or inactive.

Click a status to see only the tables that have that status.

Table Name

Category

Status

Adverse Event Log (AE)

Safety

active

Early Imaging Documentation of Informed Consent (AVCNSNT)

Early Imaging

active

Early Imaging Conclusion of Study Participation (AVCONCL)

Early Imaging

active

Early Imaging Eligibility (AVELIG)

Early Imaging

active

Early Imaging AV-133 Imaging (AVIMAG)

Early Imaging

active

Early Imaging Pregnancy Test (AVPREGNANC)

Early Imaging

active

Early Imaging Report of Pregnancy (AVREPPREG)

Early Imaging

active

Early Imaging Screen Fail (AVSCRNFAIL)

Early Imaging

active

Early Imaging Adverse Event Telephone Assessment (AVTEL)

Early Imaging

active

Contact Information Brain Bank (BBNKINF)

Operational

inactive

BIOSPECIMEN_CELL_CATALOG (BIOSPECIMEN_CELL_CATALOG)

Ancillary

ancillary

Biospecimen_Analysis (Biospecimen_Analysis)

Ancillary

ancillary

Change of Category Form (CHNGCAT)

Operational

inactive

Clock Drawing (CLCKDRAW)

Cognitive Assessments

active

Clinical Diagnosis and Management (CLINDX)

Diagnostic Features

inactive

Clinical Labs (CLINLAB)

Biospecimens

active

Center - Participant (CNOPAT)

Operational

active

CODE_DECODE (CODE_DECODE)

Operational

inactive

Cognitive Categorization (COGCATG)

Cognitive Assessments

active

Cognitive Change (COGCHNG)

Cognitive Assessments

active

Cognitive Assessments (COGTIME)

Cognitive Assessments

inactive

Conclusion of Study Participation (CONCL)

Enrollment

active

Concomitant Medication Log (CONMED)

Medical History

active

Documentation of Informed Consent (CONSENT)

Enrollment

active

Continuing Consent (CONTCNSNT)

Enrollment

active

CORIELL (CORIELL)

Ancillary

ancillary

CORIELL_CATALOG (CORIELL_CATALOG)

Ancillary

ancillary

CORIELL_SAMPLE_TEST (CORIELL_SAMPLE_TEST)

Ancillary

ancillary

COVANCE (COVANCE)

Ancillary

ancillary

Current Medical Conditions Log (CURRCOND)

Diagnostic Features

inactive

Documentation of Screening DaTscan Imaging Consent (DATCNSNT)

Enrollment

active

DaTscan Imaging (DATSCAN)

Imaging

active

Deep Brain Stimulation (DBS)

Medical History

inactive

Digital Biomarker Adverse Event Log (DGBAE)

Ancillary

ancillary

Digital Biomarker Conclusion of Study (DGBCNCL)

Ancillary

ancillary

Digital Biomarker Eligibility (DGBELG)

Ancillary

ancillary

Digital Biomarker Subject Participation (DGBSST)

Ancillary

ancillary

Digital Biomarker Device Accountability (DGDVACCT)

Ancillary

ancillary

Diagnostic Features (DIAGFEAT)

Diagnostic Features

inactive

Genetic PD and Registry PD Cohorts - Diagnostic Questionnaire (DIAGQUES)

Diagnostic Features

inactive

Diagnosis Review (DIAGREV)

Diagnostic Features

inactive

DNA Sample (DNA)

Biospecimens

inactive

Brain and Bank Tissue Donation Plan (DONATPLN)

Operational

inactive

DTI Regions of Interest (DTIROI)

Ancillary

ancillary

Determination of Freezing and Falls (DTRMFALL)

Medical History

active

Device Accountability Log (DVACCT)

Ancillary

ancillary

Device Deficiency Log (DVDEFIC)

Ancillary

ancillary

Device Placement Log (DVPLACE)

Ancillary

ancillary

Early Imaging ECG (EKG)

Early Imaging

active

Epworth Sleepiness Scale (EPWORTH)

Sleep Assessments

active

Family History (FAMHXPD)

Medical History

active

Family History Sub-Study (FAMHXSUB)

Ancillary

ancillary

Florbetaben Eligibility (FBELIG)

Ancillary

ancillary

Florbetaben Imaging (FBIMAG)

Ancillary

ancillary

Features of Parkinsonism (FEATPD)

Diagnostic Features

active

Digital Biomarker Full Active Test (FLACTIV)

Ancillary

ancillary

FOUND (FOUND)

Ancillary

ancillary

Contact Information FOUND (FOUNDINF)

Operational

inactive

FOUNDSRDX (FOUNDSRDX)

Ancillary

ancillary

Gait Data & Arm swing (GAIT)

Ancillary

ancillary

Gait Assessment Genetic Cohort (GAITASMT)

Ancillary

ancillary

Gait Assessment - Inclusion/Exclusion (GAITINEX)

Ancillary

ancillary

Geriatric Depression Scale (Short Version) (GDSSHORT)

Behavioral Assessments

active

Genetic Counseling Form (GENCOUNS)

Ancillary

ancillary

General Physical Exam (GENPHYEX)

Medical History

active

Grey Matter volume extraction from MRI T1 (GMVOLUME)

Ancillary

ancillary

Hopkins Verbal Learning Test - Revised (HVLT)

Cognitive Assessments

active

Informed Consent Tracking Log (ICFLOG)

Enrollment

active

Image Performed Outside Expected Visit (IMGUNSCH)

Ancillary

ancillary

INCIDENTS (INCIDENTS)

Safety

inactive

Inclusion Exclusion (INEX)

Enrollment

active

Investigator Signature (INVSIG)

Operational

inactive

iPSC Subject Eligibility (IPSCELIG)

Ancillary

ancillary

iPSC Blood Sample (IPSCLAB)

Ancillary

ancillary

IUSM_CATALOG (IUSM_CATALOG)

Ancillary

ancillary

KINETICS (KINETICS)

Ancillary

ancillary

Research Biospecimens (LAB)

Biospecimens

active

LEDD Concomitant Medication Log (LEDDLOG)

Medical History

active

Lexical Fluency (LEXICAL)

Cognitive Assessments

active

Benton Judgement of Line Orientation (LINEORNT)

Cognitive Assessments

active

Letter - Number Sequencing (LNSPD)

Cognitive Assessments

active

Lumbar Puncture (LUMBAR)

Biospecimens

active

Medical Conditions Log (MHXGEN)

Medical History

active

Montreal Cognitive Assessment (MoCA) (MOCA)

Cognitive Assessments

active

Modified Boston Naming Test (MODBSTN)

Cognitive Assessments

active

Modified Schwab & England Activities of Daily Living (MODSEADL)

Motor Assessments

active

Magnetic Resonance Imaging (MRI) (MRI)

Imaging

active

Cohort Assigned based on Mutation Result (MUTASGN)

Ancillary

ancillary

Genetic Testing Results (MUTRSLT)

Ancillary

ancillary

Subject Participation Status (MUTSTAT)

Ancillary

ancillary

Genetic Mutation Testing Form (MUTTEST)

Ancillary

ancillary

NOTIFICATIONS (NOTIFICATIONS)

Operational

inactive

Neuro QoL: Cognition Function - Short Form (NQCOGNS)

Cognitive Assessments

active

Neuro QoL: Communication - Short Form (NQCOMMS)

Cognitive Assessments

active

Neuro QoL: Lower Extremity Function (Mobility) - Short Form (NQOLLEFS)

Motor Assessments

active

Neuro QoL: Upper Extremity Function (Fine Motor, ADL) - Short Form (NQOLUEFS)

Motor Assessments

active

MDS-UPDRS Part III ON/OFF Determination & Dosing (NUPDRDOSE)

Motor Assessments

active

MDS-UPDRS Part I: Non-Motor Aspects of Experiences of Daily Living (nM-EDL) (NUPDRS1)

Motor Assessments

active

MDS-UPDRS Part I Patient Questionnaire: Non-Motor Aspects of Experiences of Daily Living (nM-EDL) (NUPDRS1P)

Motor Assessments

active

MDS-UPDRS Part II Patient Questionnaire: Motor Aspects of Experiences of Daily Living (M-EDL) (NUPDRS2P)

Motor Assessments

active

MDS UPDRS Part III (NUPDRS3)

Motor Assessments

active

nUPDRS Part III Post Dose (NUPDRS3A)

Motor Assessments

inactive

MDS-UPDRS Part IV: Motor Complications (NUPDRS4)

Motor Assessments

active

MDS-UPDRS Tagging Status (NUPDRTAG)

Ancillary

ancillary

Consent Withdrawal for Optional Procedrs (OPTCNSNT)

Enrollment

inactive

Participation in Other Clinical Trials (OTHCTRL)

Operational

inactive

Other Clinical Features (OTHFEATPD)

Diagnostic Features

active

PAGE_DSCR (PAGE_DSCR)

Operational

inactive

Household Activity (PASEHSWK)

Motor Assessments

inactive

Leisure Time Activity (PASELS)

Motor Assessments

inactive

Participant Status (PATIENT_STATUS)

Operational

active

Peripheral Blood Mononuclear Cells (PBMC)

Biospecimens

inactive

PD Diagnosis History (PDDXHIST)

Diagnostic Features

active

PD Features (PDFEAT)

Diagnostic Features

inactive

Use of PD Medication (PDMEDUSB)

Medical History

inactive

Use of PD Medication (PDMEDUSE)

Medical History

inactive

Neurological exam: Cranial Nerves (PECN)

Medical History

inactive

Neurological Exam (PENEURO)

Medical History

active

Participant Motor Function Questionnaire (PQUEST)

Diagnostic Features

active

Pregnancy Test (PREGNANC)

Medical History

active

Primary Clinical Diagnosis (PRIMDXPD)

Diagnostic Features

active

Prodromal, Genetic Unaffected and Registry Unaffected Cohorts - Diagnostic Questionnaire (PRODDIAG)

Diagnostic Features

inactive

Prodromal Cohort Eligibility (PROELIG)

Operational

active

Prodromal History (PROHIST)

Diagnostic Features

active

Query Tracking (QUERIES)

Operational

active

Questionnaire for Impulsive-Compulsive Disorders in Parkinson’s Disease (QUIP-Current-Short) (QUIPCS)

Behavioral Assessments

active

Research Proxy Designation (RAD)

Enrollment

active

Randomization table (RANDOM)

Operational

inactive

Features of REM Behavior Disorder (REMBHVDS)

Behavioral Assessments

inactive

REM Sleep Behavior Disorder Questionnaire (REMSLEEP)

Sleep Assessments

active

Report of Pregnancy (REPPREG)

Medical History

active

Subject Continuation (SBJCONT)

Operational

inactive

SCOPA-AUT (SCOPAAUT)

Autonomic Assessments

active

Demographics (SCREEN)

Enrollment

active

Screen Fail (SCRNFAIL)

Enrollment

active

Symbol Digit Modalities Test (SDM)

Cognitive Assessments

active

Modified Semantic Fluency (SFT)

Cognitive Assessments

active

Signature Form (SIG)

Operational

inactive

Site Transfer Form (SITEXFER)

Operational

inactive

Site Number-Name List (SITE_NAMES)

Operational

active

Skin Biopsy (SKBIO)

Biospecimens

active

Skin Biopsy Eligibility (SKBIOELG)

Enrollment

inactive

Self Referrals PPMI Pathology Core (SLFREF)

Operational

inactive

Socio-Economics (SOCIOECO)

Enrollment

active

State-Trait Anxiety Inventory (STAI)

Behavioral Assessments

active

ST_CATALOG (ST_CATALOG)

Operational

inactive

Surgery for PD Log (SURGPD)

Medical History

active

TAP-PD Conclusion (TAPCONCL)

Ancillary

ancillary

TAP-PD Subject Eligibility (TAPELIG)

Ancillary

ancillary

TAP-PD OPDM Assessment (TAPOPDM)

Ancillary

ancillary

TAP-PD OPDM Use Questionnaire (TAPUSE)

Ancillary

ancillary

(Tau Substudy) Documentation of Informed Consent (TAUCNSNT)

Tau Substudy

active

(Tau Substudy) Eligibility (TAUELIG)

Tau Substudy

active

(Tau Substudy) MK-6240 PET Imaging (TAUIMAG)

Tau Substudy

active

(Tau Substudy) Pregnancy Test (TAUPREGNANC)

Tau Substudy

active

(Tau Substudy) Report of Pregnancy (TAUREPPREG)

Tau Substudy

active

(Tau Substudy) Adverse Event Telephone Assessment (TAUTEL)

Tau Substudy

active

Adverse Event Telephone Assessment (TEL)

Safety

active

Trail Making A and B (TMT)

Cognitive Assessments

active

Transitioning Participant Status (TRANSITION_STATUS)

Operational

active

UNATTAINABLE_DATA (UNATTAINABLE_DATA)

Operational

inactive

University of Pennsylvania Smell Identification Test (UPSIT) (UPSIT)

Olfactory Assessments

active

Visit Status (VISSTAT)

Operational

active

Vital Signs (VITAL)

Medical History

active

Whole Blood Sample (WHOLEBLD)

Biospecimens

inactive

Wearable and Sensor Adverse Event Log (WRSNSAE)

Ancillary

ancillary

Wearable Conclusion (WRSNSCNL)

Ancillary

ancillary

Wearable and Sensor Eligibility (WRSNSELG)

Ancillary

ancillary

Wearable and Sensor Participation Status (WRSNSSST)

Ancillary

ancillary

_ALL (_ALL)

Operational

active

AV-133 Scan Source (ind_av133_metadata)

Ancillary

ancillary

AV-133 Analysis Data (ind_av133_sbr)

Ancillary

ancillary

SPECT Scan Information Source Document (ind_dat_source_data)

Ancillary

ancillary

FBB Scan Source (ind_fbb_metadata)

Ancillary

ancillary

FBB Analysis Data (ind_fbb_results)

Ancillary

ancillary

MRI Imaging Data (ind_mri_metadata)

Ancillary

ancillary

MRI Imaging Data Transfer Information Source Document (ind_mri_source_data)

Ancillary

ancillary

ind_rbd_psg (ind_rbd_psg)

Ancillary

ancillary

DATScan Analysis (ind_spect_sbr)

Ancillary

ancillary

SPECT Visual Interpretation Results (ind_spect_vi)

Ancillary

ancillary

Olfactory SRQ (ind_srq)

Ancillary

ancillary

Olfactory UPSIT (ind_upsit)

Ancillary

ancillary